Staying Ahead
I've said before that the inherited ataxias do progress neurologically*. I know that, I've seen that, and I realize progression is both inevitable and unpredictable. I need to be ready to make appropriate accommodations. But a dramatic transition (there have been many) is always harder to take in stride. Earl's and my goal is to hit the 'just in time' point in acquiring new devices–neither too early, nor too late. It's a continual struggle between my 'one day at time' ethos, self-esteem, fear, caution, and anticipation. I'm still working on the balance. Transitioning from trekking poles to a walker had its down and upsides. A walker removed all doubt that I had a disability** and strangers no longer had to wonder if I was drunk or high. I felt more stable, less frightened, and it didn't impact my ability to venture out. But, a walker for gawd's sake! It made me feel so vulnerable—and noticeable. I thought I h...