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Showing posts from April, 2018

Up in the Night

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There are so many things that make having a movement disorder annoying, but two things really stand out.  One is having to think about every single component of basic activities when I never did before.  Secondly is getting up during the night.  Having a pea–sized, rather than camel–sized bladder makes it more complicated with Ataxia.  I'm grateful to not be cognitively impaired as I awaken, requiring only a brief period of orientation to get the correct direction. However, it's important to remember where I am.  It's either in Lake Oswego with Earl on the left side of the bed, the bathroom is to the right or in Maui where he sleeps on the right and the bathroom is to the left. But, there is one more thing to think about.  Thelma, the travel wheelchair, brakes high in the back.  Louise, the home wheelchair, brakes low in the front. Which chair awaits*? What would be the consequence of getting it wrong?  If facing the wrong direction, I could cough in Earl's face. 

March On!

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It's no secret that my political views lie to the left of center.  This post may well offend some more conservative friends, but it won't be the first time.  The 'March for Our Lives' was important to me, but I was concerned about my limited mobility.  I needed Earl to get us there and he strategically parked halfway between the start and the finish.  It wasn't too far before the three of us reached the gathering multitudes and was also easy for us to return to the car at the end. Have scooter, will march Venturing forth in a large crowd when one has a disability and views people at waist level has its disadvantages.  In fact, it can be downright hazardous both for me and those in the crowd.  I learned in Disneyland to keep your eyes straight ahead, pay attention, and move with the crowd*.  I was relieved not to have been involved in any mishaps.  Fortunately, I had Earl and granddaughter Zoe to blaze the trail, but I did manage to score Earl's heel t